This year UKCS is supporting a local fundraising campaign “Brew for Blake” which is affiliated with The Basic Life Charity, based in Felixstowe.

Blake Ainsley, (11) and his brothers Ashton (8) and Max (4) are affected by the condition Hereditary Multiple Exostoses (HME).  HME results in the growth of benign tumours on the bones of the sufferer.  This rare genetic bone condition affects 1 in 50,000 people, causing significant pain and difficulty when performing simple tasks such as walking or sitting.  In order to manage the pain Blake needs morphine up to six times a day.

Currently the only specialist treatment available in the UK is provided at the Royal Hospital in Edinburgh.  Blake’s family have to travel there regularly for treatment, at their own expense with no financial assistance provided by the government or NHS.

UKCS is seeking to help Blake’s family by raising awareness of the condition and holding fundraising events.  The next event on the calendar is a Halloween bake sale on the 31st October.  If you are in the area please come along and support this cause and enjoy a tasty treat at the same time.

External links

Brew for Blake Facebook page

Facebook event page for the bake sale fundraiser

‘Just Giving’ page for making donations

Further information about HME